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Ms. Hélène Campbell
c/o L'Agence Mensour Agency Ltd.
41 ch. Springfield Rd.
Ottawa, Ontario K1M 1C8
Canada

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Thursday
Feb232012

LYLT

I keep hearing the saying. “If you don't have anything nice to say, don't say anything at all”

How many of you practice that. I know I do. Now I shouldn’t be mentioning that after a dry spell of almost 2 weeks of no blog posts. You are all going to think I have nothing nice to say about being out here in Toronto. That’s not true. I have so many great things to say; if I had the energy I would be telling you about everything. Trust me, I want to. I am considering hiring an assistant so they can do the work while I eat Reeses! Haha! 

I’m off the antibiotic. I have restarted my physio, 3 times a week, and every Wednesday there is a support group, where patients on the wait lists and their support people can have a chance to talk. We meet and speak about anything and everything. I love it. I dont really have much of an appetite, but thats where the reeses, doritos and ketchup chips kick in.

Although my activities have been a little more limited due to my current health situation, I have not let it get me down. I will be honest, I don’t like not being in control but I am learning. It is all about compassion, patience, appreciation and most of all, I am learning about pride. I am a little too proud to admit I need help. I appreciate my walker and it’s a beauty but I have made the decision to get a wheel chair as well. I will be able to do that much more.

Last weekend my family came down to visit and it was absolutely wonderful. It was hard to see them leave, but I know they’ll be back soon (as soon as they show off their new clothes they’ll be dying to come back and get some more). Mary (my older sister) bought me a beautiful Owl Necklace and whenever I wear it I think of her.

It was Elizabeth (my younger sisters) 18th Birthday, we went to Potted Potter; (a Harry parody) and it was great. I honestly never thought I would say this but laughing is exhausting. I love doing it so I won’t stop. I have trained myself to laugh on the inside, so I kind of just sit there and shake – or it kind of looks like I’m hyperventilating. People are going to think I am a suffocating robot with nasal prongs.

When I was in the hospital around Halloween my brother told me to about The Hunger Games. I finished the book and will be taking David (my brother) to the Premiere of the movie, compliments of Ellen DeGeneres.  (THANKS ELLEN! CANT WAIT) David and I don’t know what to wear yet. He’s going to be my date. I am looking forward to that.

I want to say thank you, again, for the endless support, love, and encouragement. I am surrounded by kindness and positive energy. 

As you all support, love, pray and hope for me to get my lungs, I would like to dedicate this blog to every one waiting on the list, alung with me. I know this support is magnificent and so I am using the support I have to support others. Payin it Forward. 

LYLT (love you lung time)

Hélène

Ps – I think I’m getting a cold, oh no. On the bright side – Ellen DeGeneres surprised me, took my breath away and talked about Organ Donation on her show. Since then, Trillium has seen an increase in numbers - woohoo baby!! What a fantastic person Ellen is! She has an awesome team working with her, they must be so busy. We have been getting such encouraging positive messages but I really want to emphasize that it wouldn’t have happened without the support of everyone.

We’re all going to dance together when I am healthy and up and running ;)

That’s a promise

and Thank You Ellen DeGeneres, on behalf of the world

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Reader Comments (4)

Hi there - I saw you on Ellen, and you ARE such a positive person! I believe that type of attitude is what is going to get you through this! Kudos to Ellen and to Justin Bieber for shining a light on organ transplant! They have provided people with a huge gift. Wishing you a very healthy future - something tells me you're going to be up and about in no time, and dancing with Ellen!

February 24, 2012 | Unregistered CommenterS.

I'm sure that I am speaking for others when I say that I LOVE reading your blog posts, no matter how infrequent they might be. You have always had such insight about people, places, things...I love hearing your perspective on things, always have. Keep them coming, as often as you are able! >3.
I was so glad to hear you had a wonderful weekend with your family! There's nothing like family!
I'm also glad to hear that physio has started again....one step at a time, remember that! It's so important to pace yourself and conserve when you can.....oh, and about the w/c, choose a sporty one...Moxy will appreciate it traveling in style, esp now that you are in TO...lol!
BIG HUGS to you and Manon....LYLT!
B xoxo

February 25, 2012 | Unregistered CommenterBrenda

Hi Helene,
My kids (14, 12, and 10 ) and I have been following your story since we saw you on Ellen and we have to say you are a remarkable person! We pray for you every night and know God will take care of you. We too are advocates of organ donation as we have been affected by the truly, most altruistic act anyone could imagine. My sister gave her kidney to my mother who was in renal failure 4 yrs ago. Unfortunately my 3 kids share the same diagnosis as their grandmother . It is called CYSTINURIA. My eldest who is the worst passing over 1000 kidney stones (with and without surgery) is preparing for yet another surgery (her last one the day after Christmas) on Monday Feb 27. I quit my job as a Registered Nurse upon their diagnosis (at 2, 4 and 6) to care for their needs and vowed to try and preserve their kidney function and PREVENT the need for transplantation. I remember as a new graduate nurse listening to a presentation on Organ Donation by CORE, a Pittsburgh based organ recovery company serving our area. This symposium influenced me to drive and apply for a new position as an organ procurement coordinator. Unfortunately, I did not get hired but as the years have gone by I have had many coincidences that led me back to Organ Donation. I pray that God guides me to do what I am put here on Earth to do and now I think I am not only to use my education and medical knowledge for my kids but also to help promote Organ Donation. We watch Ellen and have thought the same thing as you, trying to reach someone with noteriety over the years to help us to promote knowledge of my children's rare incurable disease as well. I just want you to know that you are truly a strong, inspiring person and you have made an impact on me and my kids and I am sure MANY others. God has Blessed you in many ways and I am sure you already know this!

February 25, 2012 | Unregistered CommenterDawn Bare

Keep on keepin' on, Missy! Just bought a copy of Hunger Games; Jenna and I reading it together. Thinking of you always... xxoo Carla

February 26, 2012 | Unregistered CommenterCarla M.

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